SAME TIME TOMORROW

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Posted in Uncategorized by Sean Holton on October 19, 2009

sisyphusToday I had my first M.R.I. scan in three months, and got some very good news: No recurring tumor. The radiation and chemo drugs have done their job splendidly thus far, and the brain cancer that was diagnosed in late July is being held in check. My neuro-oncologist, Dr. Bobustuc, said he was “very happy” with the results of the scan not only because it shows no recurring tumor but because it shows no lesions or tumors popping up anywhere else in my brain.

So all of this is as good a report that someone with my condition could have hoped to get. About the only thing better would have been if the M.R.I. had detected that I was about to give birth to a cancer-free, identical twin of myself. But when I aggressively cross-examined Dr. Bobustuc about that scenario, he insisted that it was medically impossible despite the reams of documentation I brought with me from my own research into the matter. (Damn you forever, Internet!)

Now I shift gears to the standard follow-up chemo regimen, which is five doses of pills on consecutive days on 28-day cycles. That means five days on, 23 days off, five days on, 23 days off, etc. Each daily chemo dose will be double the strength of the daily doses I took for 42 days straight during radiation, but because it’s going to be in short cycles I’m expecting the cumulative effect (fatigue, etc.) to be much more manageable.  I’ll be getting additional M.R.I.s every two months to check on progress. So my next M.R.I. will be in early January.

This maintenance regimen should give me plenty of hope to go on for at least six months to a year, the doc said. After that, if my body starts to build up resistance to the Temodar chemo drug and it loses its effectiveness there are other options for other chemo agents that each have the potential of adding months at a time, consecutively, to my life expectancy. And all of that is GREAT news, considering that most people unable to get treatment in my situation would already be dead by now.

Meanwhile, I’m feeling better and stronger each day. Rode 10 miles on my bike on Saturday. Doc says I can even play golf soon — which would be a true miracle, since I never could play before.

I’ll keep everyone posted on future developments. Thanks.

(Production note: Golf joke courtesy of Patty Huff from a phone conversation several weeks ago. I’ve been saving it up for just the right time.)

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37 Responses

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  1. fish said, on October 19, 2009 at 6:40 pm

    great news!! hoping to maybe get to O’do sometime for a weekend bike ride – and escape from the balloon boy state! (had to work that in somehow, don’t you know?)

  2. Kathryn Quigley said, on October 19, 2009 at 6:50 pm

    Yippee! For the clear MRI, that is.
    Not “yippee” for the cancer. Or chemo 5 days a week. But at least it’s better than chemo every day.
    AND you are not Balloon Boy or his dad!

  3. bluedevil said, on October 19, 2009 at 8:41 pm

    Great news, Seanboy. I can’t wait to get you on the course again so we can test my latest theory: Brain cancer cures a slice! (I know that sounds a little insensitive, but remember the source. And besides, you have to admit that it makes as much sense as anything else does in this stupid game… Or in life, for that matter.)
    Cheers, mate. Talk soon.

  4. Patty Noland said, on October 19, 2009 at 8:51 pm

    Sean,
    That is SUCH great news! I am so happy to hear it. By the way, I thought you were good at golf, in light of all the time you have spent through the years at Rockwood Country Club. Or were you doing something else on the links? (ha ha 🙂
    Love,
    Patty

  5. sue Holton said, on October 19, 2009 at 9:02 pm

    Sean, what wonderful news from your MRI ! So glad to hear you are feeling stronger, I don’t think I could even ride ten miles on my bike. I think Caley and Chopper sense you are feeliing better which is why they are giving you a run for your money.
    Stay well Seanboy!

  6. Julie Holton said, on October 19, 2009 at 9:45 pm

    I love you Sean.

    P.S. Don’t you remember when you won the TWA golf tornament in St. Louis?

  7. Lisa said, on October 19, 2009 at 10:13 pm

    I’m glad to hear your good MRI report, Sean. You continue to be in my prayers.

  8. Chloe said, on October 19, 2009 at 10:18 pm

    Sean, This is such great news. And the fact that you are feeling better and have the energy to make a 10 mile back ride is great news too. Hope to hear you’re out playing golf on the next post. Congratulations on the good results.

  9. Jamie said, on October 19, 2009 at 10:36 pm

    Hi Sean

    I’m definitely rooting for Sisyphus and his rock. May you push it up and over so that is doesn’t roll back ever.

  10. Tonyb said, on October 19, 2009 at 10:55 pm

    Lard
    Wonderful!! So glad to read you..Keep us informed.Hey,stop by the TMix if you get a chance…

  11. Lois Grebowski said, on October 19, 2009 at 10:58 pm

    awesome news!

  12. Ivy Green said, on October 19, 2009 at 11:05 pm

    Lard/Sean,
    What a talented writer you are with such a great story to tell…and it keeps getting better and better. Thanks for keeping us inspired.

  13. ellenpholton said, on October 19, 2009 at 11:10 pm

    I love you Sean.

  14. Flatus said, on October 19, 2009 at 11:13 pm

    Now, as you race your bicycle through the streets of Orlando, listen to the voice whispering in your ear, “Respica te, hominem te memento”. Which, in your case, would mean, pull over sonny, you’re speeding!

  15. Dudemaster said, on October 20, 2009 at 12:47 am

    Glad to hear it, bro. 10 miles?! I can’t even drive 10 miles without getting tired. Funny post; keep rockin’.

  16. RebelliousRenee said, on October 20, 2009 at 7:32 am

    Sean….
    amazing!… we get snow here in NH in Oct and you get better…. just a coincidence?
    I think not…. :0)

    all the best to you…

  17. Barbara Hill Bissonnette said, on October 20, 2009 at 7:44 am

    Sean, thrilling news. You and your family continue to be in my prayers.

  18. patd said, on October 20, 2009 at 9:50 am

    lard, tell that doc about minerva aka athena springing from the head of zeus. not an identical twin maybe but a armor clad woman warrior is close enough and potentially more fun on the golf course. or off.
    looking forward to seeing soon some of your birdies and eagles on the trail.

  19. Kathy O'Brien Pinter said, on October 20, 2009 at 11:00 am

    Wow. I just spent the morning with Sean Holton. And it was good. Thanks for sharing your thoughts, feelings and photos. It is all beautiful.

  20. sam said, on October 20, 2009 at 11:34 am

    sean,
    great news!! I was sure you would do great, but the MRI confirmed it. Hope your continuing regiment goes just as well-and I don’t know why it shouldn’t for such wonderful guy.
    Love
    Theola

  21. Craig Crawford said, on October 20, 2009 at 6:10 pm

    Woo-hoo! Dad is in a three-point stance for a sprint to the golf course, even has a free coupon for you.

  22. Molly BB said, on October 20, 2009 at 7:12 pm

    Sean – What a surprise, just now, to find an entry when I came here on a whim and then to learn such GREAT news regarding the M.R.I.! I am SO glad for you! You continue in my thoughts and prayers daily.

  23. Pookie said, on October 20, 2009 at 11:10 pm

    Keep those MoJos workin!

  24. Pat & Becky said, on October 21, 2009 at 10:59 am

    Thanks for the update, sean. You’ve been in our thoughts daily!

    please drop one of us an email when you feel the energy to do so.

    “Ride, Captain ride…” !!

    P & B

    toddisgodd@37.com

  25. Old Scratch said, on October 21, 2009 at 1:29 pm

    Wonderful news for you indeed–drugs, radiation, prayers, thoughts, love and… have proven to be of some service. Even with the inconvenient truth of continuing chemo a new day has dawned.
    As to Sisyphus–clever on so many levels. Surely you cannot be suggesting that ongoing treatment is Sisyphian? Incessant perhaps, but not futile. Did those damn Jesuits lead you to misinterpret Camus? Remember, “What counts is not the best living but the most living”. Forget that claptrap about moments that take your breath away versus number of breaths. Enough rant. It must relate to the punishment of golf, yes? Rock on Sean.

  26. claudine hellmuth said, on October 21, 2009 at 2:11 pm

    yay! great news!! 10 miles on your bike too!

  27. Justus said, on October 21, 2009 at 5:52 pm

    Sean I am so glad for you–keep on trucking.

  28. Kelley Hazen said, on October 21, 2009 at 7:00 pm

    I am glad you are better but am mostly troubled by the conflicting golf reports. Please explain.

  29. Elaine Kramer said, on October 22, 2009 at 11:49 pm

    The world is a better place today, with this news. All good thoughts coming your way.

  30. Greg Miller said, on October 23, 2009 at 5:14 pm

    Congratulations! Best news I’ve read all week. Hope to see you soon.

  31. ct, Carol said, on October 24, 2009 at 6:58 am

    Sean, I think intense, but safe, exercise is important. Look at Lance Armstrong, he’s a walking miracle. Love, peace and hope buddy.

    Carol

  32. Tim Holton said, on October 25, 2009 at 3:57 am

    you are kickin that rock’s ass(not like Sissypuss). Keep on pushin Seanie.

    I love you, Tim

  33. Becky Hall said, on October 28, 2009 at 5:59 pm

    Wonderful news Sean – but not surpised….what would you expect from a Korte Beaver 🙂 ?#$! You continue to remain in my thoughts & prayers –

  34. Keith Kohn said, on October 29, 2009 at 12:37 am

    Sean,

    This is excellent news. You were a fighter at work and you’re kicking ass now.

    I hope you keep up the successful treatments — and maybe master a set of golf clubs before all is said and done.

  35. Ann Hellmuth said, on October 29, 2009 at 10:58 am

    Happy 50th birthday Sean. Hope you have a wonderful time with your brothers and sisters.

    Love ann

  36. Michael "Mike" Hamilton said, on October 30, 2009 at 5:59 pm

    Sean
    I’ve spent hours and hours reading/enjoying/learning about updates on you and your family. Heck, I even missed a MNF game on the tube (not a big screen yet, just a 31″ 17 year old Sony) going through the blog and reading out loud to my wife endlessly.
    And for those who didn’t make the elementary pic, there I was in your group shot on the front row. I’ve wondered how you have been through the years, and you darn sure picked an odd way to let all of us know that care about you. I even remember staying at your house once, we were probably 10 or 12 I suppose. Thanks for sharing your story with us. I hope to be in your neighborhood in the near future (since I’m retired) and if that can happen, I’m buying. And yes, you can have a double! Cheers!

  37. Mike Griffin said, on November 9, 2009 at 7:00 am

    GREAT NEWS, Sean. Every day is a victory, man.


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